The first moment I saw you my sweet boy, my heart stopped beating and in that moment all the worry and fear that I had felt after receiving your diagnosis, ceased to exist. No matter how much I tried to prepare myself for all the worst outcomes and how much I tried to educate myself on what it would be like to have a child with special needs,Trisomy 21(Down Syndrome), and congenital heart defects. Nothing could have prepared me for how much I would love you and how nothing else seemed to matter after meeting you for the first time. No matter how much I tried to prepare myself, it was all erased in that moment that I first saw your face. Those beautiful eyes and those pouty lips, to those perfectly manicured long fingernails, and that dimple in your chin. Everything about you was shear perfection. I was never taught to judge someone by their looks but boy of boy I couldn’t help but judge the beauty of everything about you. Everytime I look at you my heart skips a beat and my breathing gets a little heavier and my knees a little weaker. Oh and that smile! That smile is what gives me the strength I need to get through. That smile is like a bright and sunny day when it’s raining and completely gray. Just the way you smile with everything going on and the way nothing phases you gives me the inspiration and motivation I need to carry me forward. I remember when you were first born not being able to hold you for 5 days. As soon as I was able to hold you a few days after surgery it immediately brought me back to that moment when I held you for the first time. When I got to squeeze your tiny little body for the first time. I can say since then you have for sure have grown! Not only have you grown in size but you have grown on me and my heart. Rycker you saved mommy’s life when I was in a state of depression and personal struggles. You gave me all the reason I needed to bring myself back from rock bottom. You saved me. You made my heart full. You made our life complete. Now it’s times for me to help save you. To mend your heart, make it full and make it complete. You are my thriving fighting survivor, my hero, my fighter. As I have said before not only have you made an impact and inspired so many lives across the world, but you continue to inspire me everyday! You are the reason I share our story and give me the passion to help others who are struggling or need encouragement. I can’t wait to hold you in my arms when we are home someday soon. I ask that all of you hold your littles just a bit longer than usual. I ask that you snuggle your littles more today. You give them a few extra kisses and give them more hugs and one for Rycker. I know it’s something that is barely ever given a second thought, but it’s something that shouldn’t be taken for granted. So please do that in honor of Rycker today and hopefully one day soon I will get to hold my son at home like we should be doing.
Story written by Bridget Rohm
The creator of
The Breastfeeding Mommy website and blog
Her son Rycker just had open heart surgery and will be going in for another procedure on his heart by next week. He has been diagnosed with Trisomy 21 or more commonly known as Down syndrome. He also has AVSD a congenital heart defect(CHD).
If you would like to read more about Rycker and their I wear red for Rycker campaign check out their official blog page here of the Rycker: the ups and Downs FB Page
Click Here to read more
If you would like to recieve updates and follow Rycker’s journey with Trisomy 21 and his recovery after open heart surgery check out their FB blog page
click here to join over 2,000 of Rycker’s supporters and #ryckersheartheroes